My friend Chris Kuell sent me the story below about our mutual buddy, Becky Conrad (who I wrote about on Sunday, Jan. 14, 2007). We’ve all been deeply affected by Becky’s illness and her strength in fighting it. I thought his piece was so good I wanted to share it.
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I think it was in late 2000 when I heard about enablelink.com, an on-line magazine and store for visually impaired people and their families. They are now defunct, but early on, they paid fifty dollars for articles, and I sold them quite a few. For a while, I wrote a column called Blind Eye View, where I reviewed movies that our family saw, from a blind person’s perspective. A blind woman in West Virginia also wrote articles for enablelink, and it turned out, we had a mutual friend, Michelle Stainard. Michelle, who met Becky through an RP (retinitis pigmentosa) group, introduced us since we were the same age, were married with children, and both enjoyed writing. A friendship began.
Rebecca Conrad, or Becky, introduced me to the West Virginia Writer’s Roundtable, which allowed me to make dozens of writing friends, and definitely helped me to develop my fiction writing. Unfortunately, the group has lost some of its writing spirit, but it was a good group for a few years, and did allow me the opportunity to publish Mountain Voices, as well as giving me a certain fondness for the Mountaineer State and its proud, painful history.
Becky was born in West Virginia, and loves the state in ways that very few New Englanders could relate. Most West Virginians are very proud of their land, their coal mining history, and the almost libertarian philosophy that lives in the hills. She moved to Ohio as a youngster, and when she was in the hospital with kidney trouble as a kid, Becky was diagnosed with RP. She and her family were told that she would probably lose her sight gradually, starting around age 40, which is true for a lot of RP sufferers. But, Becky began to lose her sight at 17, and by her high school graduation, had lost nearly all of it. She married her one and only boyfriend, Bobby Conrad, who was a bluegrass musician, and they settled in Braxton County, on 26 acres of property nestled in the hills. I’m sure it’s peaceful and beautiful, but not exactly ideal for a blind person. Yet, Becky adapted, just as she’d always done.
Becky and I have been email friends for going on seven years now. She runs a family, has started a successful greenhouse business, taught herself how to use a computer for her writing, and has published many articles. She’s had pieces appear in three anthologies, and works diligently at revising and editing a novel. Her son Josh was born with a rare disease, Glycogen Storage Disease, or GSD, and Becky has become fairly expert on all the current treatments and research. She corresponds regularly with doctors, other parents, and really tries to keep up on what’s new to help Josh live a more normal life. His liver doesn’t work properly, and he has to consume loads of liquid cornstarch to keep from having low blood sugars. Twenty-four hours a day, there is a part of Becky that is worrying about Josh and if his blood sugar is okay.
Unlike some email acquaintances, over the years, we’ve remained friends. We read each other’s work, and Becky is one of only four people who have read my novel. We talk on the phone, and have grown closer as we’ve chatted about kids, being blind, families, and the entire gambit of stuff friends talk about.
On December 30, 2006, Becky apparently passed out and fell in her kitchen after pouring herself a bowl of cereal. Her husband and son found her some twenty-minutes later, and she had no memory of the incident. They rushed her to a local hospital, then on to Ruby Memorial, the West Virginia University hospital in Morgantown. After a couple of horrendous days of testing and a hole drilled into her skull for a biopsy, the doctors determined she had an inoperable brain lymphoma. Thankfully, the cancer hadn’t spread to any other parts of her body, but the diagnosis was still pretty grim. One doctor wanted to start chemotherapy right away, but Becky decided she needed to go home and be with her family to grieve for a few days before the shitstorm commenced. On Wednesday, January 3, she spent her 45th birthday at home with the people who are most important to her.
As of this writing, she is on the fourth day of chemo treatments in her first round of six treatments. She sounds good on the phone-not too sick, and generally optimistic and positive. The day before yesterday she met a guy with the same diagnosis who came in the hospital in a coma. Now he’s strolling the halls taking time to chat with people like Becky.
Of course, there isn’t a much tougher blow in life than being told you’ve got a brain tumor, and Becky has received a tremendous outpouring of affection from the many people who know her. One friend built her a web page, where she posts photographs, and there’s a blog so people can post messages for Becky. Folks have contributed money, books, prayers and a tremendous amount of support.
I read somewhere that American’s top fears are 1. Death 2. Cancer, and 3. Blindness. Becky has rung the bell on numbers two and three, and hopefully won’t encounter number one for years to come. I think there has been an awesome response because people know and care for Becky, and want to help her and her family during these trying times. But, also, her diagnosis tweaks that fear response in all our psyches. After all, if it can happen to her, it can happen to me. Our shared humanity dictates that we do something, because God forbid, what if it happened to me?
The first few days after Becky’s diagnosis, I could think of little else. I drifted, unfocused, and along the way I kept coming back to something that happened while Christine and I still lived in Burlington, Vermont.
A college town, Burlington always had a few parties going on at any time. One hot summer day in late August 1987, some kids were having a party downtown in a multi-story apartment building. As things heated up inside, somebody tried to open a window, only to find it wouldn’t stay up. So, they got the brilliant idea of propping the window up with a bowling ball. Anyone familiar with the theorems of the late, great, Professor Max Murphy can predict what happened next.
As the party grew in intensity, a lone female pedestrian waited outside a local deli below, oblivious to the 16-pound bowling ball accelerating at 32 feet per second that was soon to change her life forever.
And, that’s just the way life is. We build fences, regularly put money in our retirement accounts, get childhood vaccines, see our dentist and primary care physician regularly, never jaywalk or drive more than 5 miles per hour over the posted speed limit, take yoga classes and practice mindfulness to reduce stress. We try all our life to build up protections, to guard against our enemies, real and perceived. But, there’s no way to avoid that falling bowling ball, or that Titlist in your brain if that is what the universe has
in store for you. The idea that we have control is just an illusion. All we can do is decide how we react when it’s our head that’s in the ball’s path.
In his book, Man’s Search for Meaning, holocaust survivor Viktor Frankl determined that the single most important factor in deciding who survived and who perished in the concentration camps was the belief that one still had an important purpose in life. Becky still has plenty to live for. First and foremost, her son and husband rely on her to be the glue and stabilizing force that keeps the family together. Becky has made arrangements for Josh to be seen by the country’s most prestigious GSD doctor in Florida, and I know how determined she is to be there with him. She has a sister, parents, a nephew, and hundreds of people who are in her corner, rooting as hard as we can. She has an unfinished novel that she’s been working on for years, and she will see it in print some day.
Despite receiving what should have been a fatal blow when a bowling ball fell on her head, Louisa Murray not only survived, but went on to graduate from medical school. The human spirit is strong, and despite the sometimes tremendous odds against us, we survive. I’ve hugged my wife and kids every single day since the bad news, held them in my grasp for a few extra seconds, and savored the feeling. Becky’s diagnosis has certainly raised my consciousness about the frailty of life, and I don’t imagine I’m alone in this new awareness. Becky’s story has something for all of us, and I am certain of one thing- she always delivers a happy ending.